Privacy Policy

Elizabeth Glaser Pediatric AIDS Foundation Web site
www.pedaids.org

The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) maintains our Web site, www.pedaids.org, in order to provide you with information about our work, programs, and events, as well as an online forum to interact with us. This Privacy Policy describes EGPAF’s treatment of information that you provide through our Web site.

This privacy statement explains what information we collect, how it is protected, and how we use it. It applies only to the Elizabeth Glaser Pediatric AIDS Foundation Web sites.

Your use of this Web site constitutes your agreement to the terms and conditions of this policy.
Changes to the Privacy Policy

We reserve the right to change the terms of this Privacy Policy. Any changes will be posted on this page. We encourage you to check this page regularly. Your continued use of the Web site following any changes to this Privacy Policy will constitute your acceptance of such changes. You agree that the information that we gather now will be subject to the Privacy Policy in effect at the time of use.
Cookies

A “cookie” is a small text file that is stored in your computer’s browser to aid and simplify your use of our Web site. EGPAF uses cookies. You may change your browser settings to not accept cookies or periodically delete cookies from your browser. The cookie cannot capture your e-mail address, retrieve any data from your hard drive, or pass on a computer virus. The cookie simply collects information you have entered into our Web site to simplify your typing and use in the future.
Information We Collect

We collect only the personal information you voluntarily provide to us or that is given to us by entities or third parties that have your permission to share your personal information. Personal information can include but is not limited to your name, mailing address, telephone number, e-mail address, and credit or debit card number, and may also include personal preferences selected from our Web site.

In correspondence, we use clear GIFs (image files) in our HTML-based e-mails to let us know which e-mails have been opened and use bounce-back technologies for undeliverable e-mails. These assist us in managing correct e-mail addresses, as well as to determine what information is important to you as a reader.

Each time you visit our site, our server will record your server address, your domain name, your browser type, your platform, the date and time of visit, and the titles of pages you view. This information is collected to help us diagnose problems, evaluate traffic patterns, and plan improvements to our site for the best usability. For instance, the most commonly-used pages should be refreshed with information more often, and the most popular browsers should be included in our test procedures before deployment.
How we use your information

We use your personal information to do the following:

1. Process your donation to EGPAF;
2. Send you newsletters and special informational brochures;
3. Contact you about our events;
4. Improve our Web site;
5. Gain your input through reader surveys; and
6. Assist in your advocacy for pediatric AIDS issues.

We receive information from other Web sites in order to process your donation or contact you regarding a request you have made. These requests may be registration information for an event, tickets, purchases from an auction or information requests.

We do not share your personal information for use by other companies except in the case where those companies are performing a service for EGPAF. For instance, a direct mailing for an event would require us to share your address with our direct mail supplier. A credit or debit card number would be shared with a credit card processing company.
Other Disclosures

We may also disclose your information in response to court orders or subpoenas or if we determine that it is necessary to do so to comply with applicable laws or to protect the interests or safety of Company or other visitors to the Web site.
Links

The Web site may contain links to other sites including, among others, those of advertisers, and other third parties whose trademarks may appear on the Site. We are not responsible for the privacy practices or the content of the sites to which we provide links. You should carefully review the privacy policies of any linked sites you access via the Web site.
Security

Protecting your information is important to us. Unfortunately, no data transmission over the Internet can be guaranteed to be 100% secure. Our website uses industry-standard SSL encryption on pages where you submit donor or payment information. Information that you submit is protected through data access security. Only authorized users can access data that you submit. Payment information is retained only for transaction processing.
Minors

We will not knowingly collect personally identifiable information from children under age 13.
How you can contact us

If you have further questions regarding this Privacy Policy, or regarding the use of or changes, additions or deletions to your personal information collected through this Web site, please contact us and include your name, telephone number, e-mail address and home address so that we may contact you. We can be reached in the following ways:

E-mail at: egpafupdates@pedaids.org; or
Call our Washington, DC headquarters at: 202-296-9165; or
Write to us at: Elizabeth Glaser Pediatric AIDS Foundation

1140 Connecticut Avenue NW, Suite 200
Washington, DC 20036
Effective Date

This Privacy Policy is effective as of January 7, 2005.

1981

Elizabeth Glaser contracts HIV through a blood transfusion during childbirth. Elizabeth and her husband, Paul Glaser, later learn that she unknowingly passed the virus to her children, Ariel and Jake.

Cofounders

1988

The Pediatric AIDS Foundation is created by Elizabeth and her two friends, Susie Zeegen and Susan DeLaurentis, after Ariel loses her battle with AIDS at age 7.

Medicine

1990

Elizabeth and Paul Glaser ask the U.S. Congress to provide funding to test HIV drugs in children. While AZT, a promising drug treatment, had already been approved by the FDA, its potential impact on children was still unknown due to a lack of research. This, in addition to the Glasers' early wins at securing research funding, set the stage for the Foundation's global leadership in research.

#4 Elizabeth Glaser contracts HIV

Professional basketball player Earvin “Magic” Johnson announces he has HIV and retires from the NBA. He credits Elizabeth Glaser with giving him the courage to speak out.

Elizabeth Glaser

1994

Elizabeth Glaser passes away from AIDS-related illnesses. The Foundation is renamed in her memory and rededicates itself to eliminating HIV and AIDS. Almost twenty years later, pediatric AIDS is virtually eliminated in the United States and Elizabeth's legacy lives on in those who are fighting to eliminate this disease around the world.

Mom and Baby

1999

As a global “go-to” leader, the Foundation committed to achieving the same results in the rest of the world with the Call to Action (CTA) project, supporting successful prevention of mother-to-child transmission of HIV (PMTCT) services in Cameroon, Kenya, Rwanda, South Africa, Thailand, and Uganda. By 2010, CTA had enabled the Foundation to reach nearly 4 million women with PMTCT services.

Baby in Pink Hat

2003

The Foundation initiates Project HEART, a public-private partnership to expand access to HIV care and treatment programs in Cote d’Ivoire, South Africa, Tanzania, and Zambia. Project HEART’s original goal was to reach 2 million people with antiretroviral therapy by 2008. The Foundation far surpassed that goal and continues its work in these countries, as well as 12 others around the world.

2008

The Foundation helps renew the President’s Emergency Plan for AIDS Relief (PEPFAR), authorizing $48 billion in global health programs. Initially launched in 2003, PEPFAR revolutionized funding for AIDS programs and allowed the Foundation’s global work and reach to expand dramatically.

Chip with Little Kid

2011

The Foundation remains committed to the elimination of pediatric AIDS, working in 16 of the most severely affected countries and more than 5,500 sites around the world. The Foundation has reached nearly 12.2 million women with PMTCT services. Nearly a quarter of all HIV-positive pregnant women worldwide who receive medicines to prevent transmission of HIV to their babies do so through Foundation-supported programs. Still, an urgent need remains. Only 52% of HIV-positive mothers-to-be have access to critical PMTCT services.

2015

2015 marks the goal of ending pediatric AIDS in Zimbabwe, Lesotho, and Swaziland. Announced in 2011, these campaigns notably recognize the Elizabeth Glaser Pediatric AIDS Foundation as a leading implementation partner that will be integral to reaching this milestone.

Jake Glaser was not even two years old when he was diagnosed HIV-positive in 1986. His mother, Elizabeth Glaser, had contracted the virus five years earlier through a contaminated blood transfusion. She unknowingly passed the virus to Jake while pregnant and to his older sister, Ariel, through her breast milk. Today, Jake is 26 years old and healthy. "Thanks to my mom and the work of many others, I am able to lead a normal and productive life," he says. Elizabeth's relentless advocacy made sure that Jake - and other children living with HIV - could have access to lifesaving pediatric HIV treatments and medicines. "But," Jake says, "the truth is there are still so many kids, many of them my close friends, who are not as lucky. The truth is we are far from done in the fight against AIDS, and there are a lot of kids out there who need our help in order to survive."

Dr. Kassaye was an adolescent when the first cases of HIV were diagnosed in her native Ethiopia. She saw the toll the growing epidemic took on friends and loved ones firsthand.“Everyone knew someone who was affected,” she says. “There was a lot of fear and sadness.”Those experiences stayed with Dr. Kassaye after she moved tothe U.S. for college and medical school. “I wanted to focus on research that directly supports HIV/AIDS program implementation,”she says. “I wanted to bring innovations into practice.” Dr. Kassaye’s work at the Foundation allows her to do just that. She works on operations and clinical research, collaborating with staff in the field to identify and solve challenges in the implementation of health programs and to research new tools and technologies that will mean better health for babies and mother around the world. Dr. Kassaye also works in a low-income health clinic in Washington, D.C., a city with one of the highest rates of HIV infection in the U.S. As a mother, this work is especially important to Dr. Kassaye. “I see young pregnant women, and I enjoy working with them one-on-one. I will do anything to make sure their babies are born healthy. To me, even one baby born with HIV is a failure.”

In September 1996, Florence gave birth to her daughter Nomthunzi. Three months later, Florence’s husband died, and Nomthunzi had become ill. Fearing the worst, Florence took Nomthunzi to a local hospital. Both she and Florence tested positive for HIV. Nomthunzi fought the disease for several more weeks, but because antiretroviral treatment was not yet available for children in South Africa, she passed away in February 1997. A few years later, Florence was introduced to the lifesaving treatments and services being offered by clinics supported by the Elizabeth Glaser Pediatric AIDS Foundation. Finding “the Foundation, for me, was a highlight of my life,” she says. “I knew that for the first time, there was someone who cared.” Through Foundation-supported prevention of mother-to-child transmission treatments, Florence gave birth to an HIV negative baby. Today, four-year-old Alex remains HIV-free and continues to thrive. Florence is healthy as well, pursuing her degree and speaking out on behalf of women and children with AIDS as a Foundation Ambassador.

Promise Council